A sea of colourful umbrellas brightened the morning at Taman Tasik Titiwangsa as over 500 participants came together for Walk-A-Payung 2025, a symbolic 3KM walk in support of Malaysians living with Systemic Lupus Erythematosus (SLE). Organised by Persatuan SLE Malaysia (PSLEM) in collaboration with the Faculty of Medicine & HCTM, Universiti Kebangsaan Malaysia (UKM), the event was held in conjunction with World Lupus Day.
More than just a walk, this annual tradition has become a beacon of hope and awareness for lupus warriors nationwide. Participants walked with umbrellas in hand – a powerful symbol of protection against sunlight, which can trigger flare-ups in lupus patients – demonstrating their support for a cause that affects thousands silently.
“Lupus is a chronic autoimmune disease that can severely affect a person’s quality of life. There’s no cure yet, and the symptoms – from joint pain to organ damage – are often invisible, making awareness crucial,” said Prof. Dr. Syahrul Sazliyana Binti Shaharir, President of PSLEM and Consultant Rheumatologist at HCTM UKM. “Through Walk-A-Payung, we’re not only raising awareness but also giving patients and their families a sense of community and support.”
The event was officiated by Dato’ Dr Norsiah Binti Ali, Director, Grade Jusa B (Medical), Ministry of Health Malaysia, alongside Prof. Dr. Syahrul. The morning kicked off with an energetic Zumba session led by the spirited Royal Fitness Squad from Universiti Malaya, before the walk was officially flagged off.
A major milestone of the event was the launch of iLawan Lupus: A Patient Dialogue Book on SLE, developed by AstraZeneca. This powerful publication features real-life stories and patient experiences, designed to strengthen understanding and communication between patients, caregivers, and healthcare professionals. It also serves as an advocacy tool to spotlight the often-unseen challenges faced by those living with lupus.
Attendees were treated to more than just the walk. The event also featured family-friendly activities including lucky draws, art contests, and engaging meet-and-greet sessions with the beloved 501st Legion Malaysia Garrison – much to the delight of young fans.
Since its inception in 2007, Walk-A-Payung has stood as a platform to amplify patient voices and foster inclusive support. With an estimated 43 out of every 100,000 Malaysians affected by SLE, PSLEM continues to champion awareness and improve quality of life for those impacted by this lifelong condition.
For those interested in learning more or supporting PSLEM’s efforts, please contact:
Illani Azalia – Executive Secretary
+6011-1061 7672
pslemhq@gmail.com
https://lupusmalaysia.org